Patient Advocacy

Co-Chair Patient and Public Engagement Group, DeNPRU-QM

2024-2027

Co-chair of the monthly Patient and Public Engagement Group (PPEG), part of the National Institute of Health and Care Research (NIHR) Policy Research Unit in Dementia and Neurodegeneration based at Queen Mary University, London (De-NPRU-QM).

Moderator ECTRIMS webinar

Initiative on Women's Health

2024

Moderated ECTRIMS webinar Initiative on Women's Health - Review of Unmet Needs featuring Prof Ruth Anne Marie, University of Dalhousie, Asst Professor Lindsay Ross, Cleveland Clinic Mellen Center and Professor Mar Tintoré, Catalonio MS Center (Cemcat) and Vall d'Hebron University in Spain.

Post Webinar Recap

Moderator
Women and MS/Shift.MS panel discussion

ECTRIMS/ACTRIMS Conference

Milan 2023

Chaired a discussion of the specific health challenges women with MS face - such as family planning, pregnancy and menopause - while also managing the disease.

Panel from left:
Birgit Bauer, MS patient & advocate; Rachel Horne, Panel Chair;
Prof Ruth Dobson, world-renowned MS expert; Roberta Motta, MS Nurse; and Roberta Incardona who lives with MS

Rachel Horne